Skip to main content

Things that made the treatment tolerable

I received great advice from Ruth, Peter, Anne, Margaret, Lynda and others about how to combat the serious side-effects of the treatment particularly the chemotherapy.

Protect one's hands

Peripheral Neuropathy is a leading side-effect flagged by the consultant and the only side-effect that I was given a separate leaflet about. 

Ruth made clear before my chemotherapy commenced that I would need to protect my hands from anything cold, the contents of the fridge & freezer and cold water. She told me that sensation of touching anything cold would be painful instantly. My solution was to buy kitchen gauntlets that protect from cold down to -50c, hot up to 250c and are waterproof. LANON Liquid Silicone Heat Resistant Glove from Amazon, £27.99

Going outdoor in freezing weather required more than one pair of glover and Peter suggested heated glove liners. My choice was day wolf Heated Gloves Liners Electric Gloves For Men Women Rechargeable Battery Waterproof Hand Warmer at £95.92

There is a lot of going to the toilet and other reasons for hand washing. To have hot water quickly available I purchased a couple of 1lt vacuum flasks to fill with hot water. ThermoCafé Stainless Steel Flask, 1.0 L

Protecting my face and neck. A walk in the open air following my first chemotherapy infusion provided me a shocking sensation of being showered by freezing rain, but it was dry. A scarf was inadequate, so I found a snood from Buff suggested by a Waitrose delivery driver. the first purchased was direct from Buff along with a balaclava I also bought a second snood of different thermal quality from Amazon. Buff Unisex New Polar Multifunctional Fleece Outdoor Tubular Bandana Scarf

On more challenging days with peripheral neuropathy, I worn cotton gloves all day to help keep my hands warm.

Keeping Warm

Long sleeved thermal vests and leggings have kept me warm. With the addition of waterproof over trousers when going out. Also quilted waterproof coat. 

We got fed up with online supermarket bread and bought a breadmaking machine in November.

I used:

Medihoney as a barrier cream.

Omron X3 Blood Pressure monitor

Braun No Touch Plus Forehead Digital Thermometer

Best Naturals Vitamin B6 25 mg 250 Tablets to reduce np.

Silicone Insert for Mask, Bracket Liner Inner Frame

Travel sickness bands from Boots, ginger nuts, ginger ale proved useful for keeping the discomfort of nausea at bay!


 




Comments

Popular posts from this blog

Chemotherapy Cycle 26

Tuesday 16th January 9:45 I arrived at the Amberley unit at Worthing Hospital for my 26th cycle of the FOLFORI chemotherapy treatment. While the process took longer than normal due to a delay in the drugs arriving, but it was easier than usual. As always I am interested in learning useful knowledge. With the clinical educator overseeing the nurse who was at the end of his training I learnt some interesting things. Training takes 5 months, patients can remain on the treatment for a great many cycles. They have had patients who have had 100 plus. The side-effects have been at a much lower lever than normal, wonderful.

4000hz

I have taken a look recently on the iPhone App Store to see if there are any useful tools to restart a distraction program again. Having reduced the irritating high pitched whistle that I constantly have on both sides four years ago though distraction it may work again. Having quietened the tinnitus before only for it to be brought back by my car alarm going off while in it. Being exposed to very loud noise makes my tinnitus increase in volume, so another attempt at distraction seems worth the effort. The first app investigated was Tinnitus Finder by Desyncra for Tinnitus , its free to download. This app took me through a series of pairs of sounds each time asking which sounded most like my own issue. At the end of the process the app reported that the noise I hear is around 4000 hz. Armed with this knowledge I sent in search for an app that would offer a selection of sounds from White Noise to sounds of nature. The Beltone Tinnitus Calmer  offers up to five different sounds ...

My audiology appointment

About a month ago I had an appointment with an audiologist at the Royal Free Hospital in Bath. The purpose was to discover if, as the majority of tinnitus suffers do I have a hearing loss. I was taken into a sound proof room for the test. After being asked about my hearing and the issues I am having with tinnitus I was handed headphones to put on and a push button. The audiologist explained the test and with head phones he proceeded to test my hearing. This was done by playing sounds at frequencies between 250 hz and 8000 hz. Once over I was shown the results which showed that it is pretty normal across the range in both ears. So this meant that I am not a suitable candidate for a hearing aid. The audiologist suggested the Hearing Therapy should be something I should consider. I agreed and he wrote to St Martin's where the local hearing therapy team is based to ask for me to be seen by one of the therapists.