My ever present friend and other health issues:

 Normal days, side-effects at a low level with even a full night's sleep on one night and only once a night need to use toilet. Easier. Blood test on Monday at Shoreham. Side- effect neuropathy of feet and fingertips. Medications base level Talked with may friends since day 9 and the oncologist appointment.

Best night's sleep for a few week's, around 5 hours and only up once. Not so concerned about the comments about the all of life treatment that the oncologist described yesterday. Conversations with Peter B-D, Charles A and Graham M all helped to put the falling CEA blood marker and stable cancer growth into perspective. It is success. Side-effects reduce to rest day normality.  Neuropathy - feet and finger tips tongue a little sore slight breathlessness Meds Anti-nausea B12 B6 Anti-acid reflux Calcium Paracetamol Observations normal BP, pulse, temp 37.7c and Blood oxygen  Phone calls with Peter, Charles, Graham, Jack and Luthfa.

Visit to Peter with Ann followed dentist and opticians. New specs are very good. Side-effects Woke up with numb right thigh again. weird, again. Neuropathy:  Hand-Foot Syndrome or Palmar-Plantar Erythrodysesthesia Breathlessness ongoing ulcer on left side of mouth roof. improving with Bonjela Lemon urine. Wind! Meds Anti-nausea B12 B6 Anti-acid reflux Calcium Paracetamol Observations normal BP, pulse, temp 37.7c and Blood oxygen  Phone conversations with Ann, Amanda and Mike.

Super Tuesday: a day of many side-effects as the past couple. A trip to Chichester for Lynda's podiatrist.  Side-effects Woke up with numb right thigh again. weird! Neuropathy:  Hand-Foot Syndrome or Palmar-Plantar Erythrodysesthesia Breathlessness ongoing ulcer on left side of mouth roof. improving with Bonjela Mild constipation, improving Lemon yellow urine  Wind! Meds Anti-nausea B12 B6 Anti-acid reflux Calcium Paracetamol Observations normal BP, pulse, temp 37.7c and Blood oxygen 

Monday, up three time during night but slept in between. Cold weather gain. Side-effects Woke up with numb right thigh again. weird! Neuropathy:  Hand-Foot Syndrome or Palmar-Plantar Erythrodysesthesia Breathlessness ongoing ulcer on left side of mouth roof. improving with Bonjela Mild constipation, improving Dark urine early. Wind! Meds Anti-nausea B12 B6 Anti-acid reflux Calcium Paracetamol Observations normal BP, pulse, temp 37.7c and Blood oxygen  Phone conversations with Louise, Luthfa, Emma, Roger C and Ann H..

Sunday, slept better and its cold! Side-effects  Neuropathy:  Hand-Foot Syndrome or Palmar-Plantar Erythrodysesthesia Breathlessness ongoing ulcer on left side of mouth roof. Nausea Dark urine Mild constipation Meds Anti-nausea B12 B6 Anti-acid reflux Calcium Paracetamol Observations Raised BP, pulse, temp 37.7c and lower Blood oxygen  Phone conversations with Emma and Graham H.

Saturday, winter remains with us so cold outside. Spoke with Emma about papers on Irinotecin. Side-effects  Neuropathy:  Hand-Foot Syndrome or Palmar-Plantar Erythrodysesthesia Breathlessness ongoing ulcer on left side of mouth roof. Mild constipation Nausea Dark urine Slept better just up twice for the bathroom visits the second at around 6 am. Meds Anti-nausea last of the post infusion does B12 B6 Steroids last of the post infusion does Anti-acid reflux Calcium Paracetamol Observations Normal BP, pulse, temp 37.4c and Blood oxygen  Phone conversations with Emma and Amanda.

Feeling a little off today. Spoke to Mark and Graham Side-effects  Neuropathy:  Hand-Foot Syndrome or Palmar-Plantar Erythrodysesthesia Breathlessness Beginning of rough palette Nausea Dark urine Mild constipation Disturbed sleep Tinnitus . Meds Anti-nausea B12 B6 Anti-acid reflux Calcium Paracetamol Observations Raise BP and pulse. normal Blood oxygen and temp. Phone Conversation with Emma.

Disturbed night sleep. Talked with Amanda and Emma Side-effects neuropathy - feet and fingers tinnitus wind rough palette dry mouth over night headache Meds B6 B12 Anti-nausea Anti-acid reflux Paracetamol Calcium Normal BP, Pulse, blood oxygen and temperature

Better night's sleep: only got up three times and returned to sleep until the final time. Spoke with Louise, Mike and Tim. Received letter for new consultant appointment for 15th December. Side-effects Worst day of this course so far Neuropathy - feet poor sleep excess urination, very yellow excessive passing of stools, but no constipation. breathlessness headache tired, lack of energy tinnitus rough sensation of palette pins and needles in fingers slight nosebleed PICC Line discomfort at time: issues with tubular bandage cover. Meds Calcium Anti-nauses B6 B12 Paracetamol use of trimovate use of Benzydamine mouthwash Normal BP, pulse, Temperature and blood oxygen

Poor night's sleep, up 4 times. Quite uncomfortable with muscular and joint discomfort. Received IV3000 dressings....... at last. Ordered on 11th October, dressing in short supply. Side-effects Poor sleep excess urination headache aching neuropathy - feet Tired, lacking energy. Tinitus end of constipation! Meds anti-nausea B6 B12 paracetamol calcium Used Triomvate cream Raised BP Normal pulse, blood oxygen and temp. phone conversations with Mike, Roger & Sarah and Charles.

An OK day. Side-effects Feeling of nausea Neuropathy Constipation Some breathlessness Darker urine Meds Anti-nausea Steriods B6 B12 Anti-acid reflux Calcium Raised BP, Pulse Normal Blood Oxygen& EMP.

 Almost a week since the last of the capecitabine tablets were on the daily ration. Now just a couple of B6 and a single antihistamine taken each day to reduce the effects of the lingering side effects. The main one being the peripheral neuropathy with the fingertips feeling deadened some of the time. Keeping the hands warm helps reduce this. All of the most significant challenges have faded away as the week progressed, the oral thrust has been the main health problem of the passed 7 days. The last of the Nystan is due to be taken tomorrow morning. The result of the Covid-19 PCR test that Dr Woodham recommended on Monday has been texted this morning. No real surprise that it is Negative. Spoke with Mike, Graham H and Emma. Temp 37.1c at 8 am.

The GP looked at the swab test result this morning and I received a a text message asking me to phone the surgery and say that I have a System One Message. This was a note from the GP confirming that I was diagnosed correctly on Monday, a Thrust infection and that I have been on the correct course of treatment this week, Nystan. Phone the Chemo Helpline to let them know the swab test result and my progress toward recovering from the Trush infection. Undertook a PCR swab this morning and prepared it for mailing. Spoke with Teresa about Paul Morris's wonderful commendation of the EWH website. tingling fingers, tinnitus and sensitive lips.  BSC - 4 Temp 36.8c Bloop pressure 150/75 Pulse 57bpm

Good night's sleep interrupted by three visits to the bathroom.  After two days of using the Nystan oral suspension for thrust infection of my tongue I am still suffering from soreness and a check at 2 pm after two doses today the centre of the tongue is red with an abraded surface and the edges show a white coating indicative of Thrush . Phoned the Surgery to check to see if the swab test result is back, not yet and then phoned for an appointment to speak with a doctor about the second level of medication. Dr Shurwell phoned and after listening to my recital of my symptoms and without the swab test result to support another form of treatment recommended continuation on the Nystan and Difflam until Monday. When the swab results are available either Dr Woodham or he would be in touch if a different course of treatment is required. 6 minute call, not rushed and plenty of understanding and sympathy. Throat easier today, less uncomfortable and speaking is less challenged. Spoke with Ma...

B6 and antihistamine tablets.  Trip to Worthing Hospital with Peter BD for blood test and deliver covid swab. Blood test result showing several areas where they are now outside the normal range. BSC - 4 Blood test done Temperature 36.5c

An extra rest day this cycle with the next cycle, number 5 starts tomorrow with the infusion. Hopefully I will be able to further my concerns about the capecitabine tablets regarding the anhydrous lactose. Phones Peter H, Ann and Peter BD phoned to confirm the arrangements for tomorrow. BSC - 4/5 with wind.

Tired during the day after a reasonable night.  Blood test with an urgent number from the MDCU. The receptionist checked to see if there were ant cancellations for later appointments, but no. She also provided a parking permit for Peter. Peter as a very good driver once again, a very good friend. BSC - 4

A rest day! A good day. BSC - 4

A final rest day before cycle 4 begins with the Oxaplatin infusion. A second appointment with Dr Webb, Consultant Oncologist I need to write a list of the questions that I have been formulating over the passed few weeks. Produced a list of 7 issues, but only need to ask about a couple Took 2 anti nausea tablets.  There is always Tinnitus! BSC - 4+3