My ever present friend and other health issues:

Normal temperature again today. The pump working at it optimum 2.5 ml per hour. Normal side-effects probable thrush  sore eyes Medication evolve eye drops Gelclaire and regular meds from previous cycles. usual high blood pressure and pulse rate normal temperature and blood oxygen

 A relatively quiet day., Side-effects Feeling of nausea neuropathy tinnitus poor sleep Meds anti-nausea steroid calcium Observations slightly high 

Cycle 8 infusion was managed by Jackie, the nurse who fitter the PICC Line in September. When I told her about the nature of the ongoing treatment, she suggested that I should look into what Mcmillan Cancer Care for   implantable port information.  Something to look research before my next oncologist appoint in March. The infusion was over 90 minutes in the new Amberley Ward on the ground floor of the North Wing at Worthing Hospital. Side-effects Feeling of nausea Neuropathy Tinnitus Meds Anti-nausea Steriods Observation All normal.

Best night's sleep for a few week's, around 5 hours and only up once. Not so concerned about the comments about the all of life treatment that the oncologist described yesterday. Conversations with Peter B-D, Charles A and Graham M all helped to put the falling CEA blood marker and stable cancer growth into perspective. It is success. Side-effects reduce to rest day normality.  Neuropathy - feet and finger tips tongue a little sore slight breathlessness Meds Anti-nausea B12 B6 Anti-acid reflux Calcium Paracetamol Observations normal BP, pulse, temp 37.7c and Blood oxygen  Phone calls with Peter, Charles, Graham, Jack and Luthfa.

Visit to Peter with Ann followed dentist and opticians. New specs are very good. Side-effects Woke up with numb right thigh again. weird, again. Neuropathy:  Hand-Foot Syndrome or Palmar-Plantar Erythrodysesthesia Breathlessness ongoing ulcer on left side of mouth roof. improving with Bonjela Lemon urine. Wind! Meds Anti-nausea B12 B6 Anti-acid reflux Calcium Paracetamol Observations normal BP, pulse, temp 37.7c and Blood oxygen  Phone conversations with Ann, Amanda and Mike.

Super Tuesday: a day of many side-effects as the past couple. A trip to Chichester for Lynda's podiatrist.  Side-effects Woke up with numb right thigh again. weird! Neuropathy:  Hand-Foot Syndrome or Palmar-Plantar Erythrodysesthesia Breathlessness ongoing ulcer on left side of mouth roof. improving with Bonjela Mild constipation, improving Lemon yellow urine  Wind! Meds Anti-nausea B12 B6 Anti-acid reflux Calcium Paracetamol Observations normal BP, pulse, temp 37.7c and Blood oxygen 

Monday, up three time during night but slept in between. Cold weather gain. Side-effects Woke up with numb right thigh again. weird! Neuropathy:  Hand-Foot Syndrome or Palmar-Plantar Erythrodysesthesia Breathlessness ongoing ulcer on left side of mouth roof. improving with Bonjela Mild constipation, improving Dark urine early. Wind! Meds Anti-nausea B12 B6 Anti-acid reflux Calcium Paracetamol Observations normal BP, pulse, temp 37.7c and Blood oxygen  Phone conversations with Louise, Luthfa, Emma, Roger C and Ann H..

Sunday, slept better and its cold! Side-effects  Neuropathy:  Hand-Foot Syndrome or Palmar-Plantar Erythrodysesthesia Breathlessness ongoing ulcer on left side of mouth roof. Nausea Dark urine Mild constipation Meds Anti-nausea B12 B6 Anti-acid reflux Calcium Paracetamol Observations Raised BP, pulse, temp 37.7c and lower Blood oxygen  Phone conversations with Emma and Graham H.

A visit to Shorham Health Centre for the removal of the pump and PICC Line service. This was undertaken by the same nurse as Monday's appointment at Bognor. Appoints made for Cycle 9 with Wednesday for the blood test, Friday for infusion and Sunday for pump removal and PICC Line Service. Slept poorly  Side-effects  Neuropathy:  Hand-Foot Syndrome or Palmar-Plantar Erythrodysesthesia Breathlessness ongoing ulcer on left side of mouth roof. Mild constipation Nausea Dark urine Meds Anti-nausea B12 B6 Steroids Anti-acid reflux Calcium Paracetamol Observations Raised BP, pulse, temp 37.7c and lower Blood oxygen  Phone conversations with Luthfa, Jack and Jai.

Saturday, winter remains with us so cold outside. Spoke with Emma about papers on Irinotecin. Side-effects  Neuropathy:  Hand-Foot Syndrome or Palmar-Plantar Erythrodysesthesia Breathlessness ongoing ulcer on left side of mouth roof. Mild constipation Nausea Dark urine Slept better just up twice for the bathroom visits the second at around 6 am. Meds Anti-nausea last of the post infusion does B12 B6 Steroids last of the post infusion does Anti-acid reflux Calcium Paracetamol Observations Normal BP, pulse, temp 37.4c and Blood oxygen  Phone conversations with Emma and Amanda.

The infusion was manged by Sharon, a vegan who talked about issues with milk. She also said that she had been a midwife, then ran a gift shop before returning to nursing. The 60 minutes infusion was to fast cause pains in my abdomen. side-effects nausea mild headache mild constipation neuropathy Poor sleep. meds anti-nausea anti-acid reflux calcium B6 B12 normal bp, temp., and blood oxygen Raised pulse  

Packed, loaded car and drove to Emma's, an easier journey than anticipated. Used the M27 that is now a smart motorway. No broken-down cars or lorries enroute so a faster journey than in June when the 50 mph restrictions were still in place. Side-effects  Poor sleep Neuropathy Some breathlessness Sore mouth - easing Rough palette - easing Tinnitus End of the mild constipation Meds Anti-nausea B12 B6 Anti-acid reflux Calcium Paracetamol Observations Normal BP and pulse. Blood oxygen and temp. Spoke with Megan about store metrics for efficiency. Staff, space, stock and money. Staff and space helped sharpen Vince Malone's ideas stock and money reflected how I would now manage them. Also spoke with Charles Whitting about an inexpensive 'investment' to improve how a store may operate. Discussed splitting epos stock counting to a daily task focusing on top sellers and low sellers. Also sent a link to Mark Fletchers video on how he is developing the new newsXpress store in a su...

Preparing to visit Emma tomorrow sorting the meds needed etc. Side-effects  Poor sleep Neuropathy Some breathlessness Sore mouth Rough palette Tinnitus Mild constipation Meds Anti-nausea B12 B6 Anti-acid reflux Calcium Paracetamol Observations Normal BP and pulse. Blood oxygen and temp. Spoke with Roger C.

Took Ann to visit Peter in Sussex Down. He was decidedly deaf in happy for us to be with him for almost an hour. Met Sue F when I returned Ann to her home, she is doing well after losing John earlier this year. Certainly a better day than Tuesday after a significantly better night's sleep. Side-effects  Neuropathy Some breathlessness Sore mouth Rough palette Tinnitus Mild constipation Meds Anti-nausea B12 B6 Anti-acid reflux Calcium Paracetamol Observations Normal BP and pulse. Blood oxygen and temp. Spoke with Jo and let her know of my 3pm appointment on Wednesday

Very poor night's sleep, needed 5 toilet journeys and hardly any sleep as trips were about every 60 to 75 minutes. Attended Martin Steele to order new spectacles: Amanda the owner was very efficient and caring about what I wanted/needed. Side-effects  Poor sleep Neuropathy Breathlessness Sore mouth Rough palette Tinnitus Dark urine Mild constipation Meds Anti-nausea B12 B6 Anti-acid reflux Calcium Paracetamol Observations Normal BP and pulse. Blood oxygen and temp. Spoke with Jack, Graham M and Ann H.

It's been about my small toes today, uncomfortable. Had an appointment with chiropodist Andrew Jenkins. Side-effects  Neuropathy:  Hand-Foot Syndrome or Palmar-Plantar Erythrodysesthesia Breathlessness Beginning of rough palette Mouth sores Nausea Dark urine Mild constipation Disturbed sleep Tinnitus . Meds Anti-nausea B12 B6 Anti-acid reflux Calcium Paracetamol Observations Normal BP and pulse. Blood oxygen and temp. Spoke with Clive J and louise Broken specs so appointment booked with Martin Steele tomorrow. mattress measured and photographed: 200 cm replacement to be made and supplied.

Feeling a little off today. Spoke to Mark and Graham Side-effects  Neuropathy:  Hand-Foot Syndrome or Palmar-Plantar Erythrodysesthesia Breathlessness Beginning of rough palette Nausea Dark urine Mild constipation Disturbed sleep Tinnitus . Meds Anti-nausea B12 B6 Anti-acid reflux Calcium Paracetamol Observations Raise BP and pulse. normal Blood oxygen and temp. Phone Conversation with Emma.

6 cycles in, halfway through this course of chemotherapy, I am feeling so much better that at the end of the first course in February. On reflection I was quite unwell for several weeks in February, March and April. Side-effects  Neuropathy:  Hand-Foot Syndrome or Palmar-Plantar Erythrodysesthesia Breathlessness Unpleasant taste in mouth Nausea Dark urine Mild constipation Disturbed sleep . Meds Anti-nausea B12 B6 Steroids Anti-acid reflux Calcium Paracetamol Observations Raise BP and pulse. normal Blood oxygen and temp.

Woke up with a temperature of 37.7c, this declined to 36.9c within 20 minutes. I did not but mentioned this to the chemotherapy helpline nurse who told me that I only need to report this sort of temperature if I have any symptoms, I also report the slow 5FU infusion rate that was due to a kink in the line. Received a call from Shoreham regarding the speed of infusion and was asked if I would be interested in coming for an earlier appointment. Considering the slow rate, I declined the offer. Friday is a PICC Line service day - 3.30 pm appointment at Shoreham Health Centre. PICC Line service was performed by Nurse Lyndsay for the second time. Booked appointments for 19th and 23rd of December. Ordered a second prescription of PICC Line dressings IV-3000 after discussing the shortage of it with Nurse Lindsay. If I get a further pack of 10, I will have enough to take me thought to the end of this course, keep 2 for spare just in case of need any unplanned redressing and share 6 with the IV ...

Home with the pump delivering fluorouracil (5FU) came home with the pump and infusion weighing 160 grams. at 11 am today it weighs 123 grams. honed Louise, the chemotherapy appointment manager at Worthing and arranged my 6th December appoint to 3 pm and advised her that I can't do 8.30 am and that 9.30 is the earliest I can get to Worthing. I now need to get new appointments for. Emma sent the website address for access to the Patients’ experiences of chemotherapy: side-effects associated with 5-fluorouracil & folinic acid in the treatment of colorectal cancer paper published in 1997, authored by CLARE DIKKEN RGN, Clinical Leader, JOHN SITZIA BA Researcher, Worthing Nursing Development Unit, Worthing.  Slept better with at least 3 hours and only one trip to the toilet. Side-effects  Neuropathy:  Hand-Foot Syndrome or Palmar-Plantar Erythrodysesthesia Breathlessness Unpleasant taste in mouth Mild headache Nausea Hiccoughs Dark urine Meds Anti-nausea B12 B6 Stero...