My ever present friend and other health issues:

Today I should have had my 53rd chemotherapy infusion, but my blood test results on Friday showed that the neutrophils were at 1.2 (10*9/L). The minimum level for chemotherapy to go ahead is 1.5.  Its not the first time that that this has happened, but because of the bank holidays including the May Day one on 5th May my next treatment will be on 19th May. This will be a break of nearly 7 weeks. No the longest gap, but certainly comes with a level of concern. The FOLFIRI treatments that I am on works best when it is administered every two weeks.  The next CT scan in a months time will be revealing! IN the mean time the deferment has brought three phone calls. the first to confirm the deferment, the second to cancel the pump disconnect IV clinic appointment and book a PICC line service appointment. The third from the chemotherapy appointment administrator to advise on the rearranged treatment appointment. Chemotherapy Protocol COLORECTAL CANCER FLUOROURACIL, FOLINIC ACID (Modi...

Had my quarterly CT Scan at Southlands Hospital's new Community Diagnostic Centre yesterday. The scan required a contrast dye to reveal the cancerous growths and Omnipaque was used. This was the same chemical as the previous scan in August. On this occasion I seemed to have a reaction with heightened feeling of warming, sneezing during the scan, sudden runny nose and irritated eyes. This has not happened during past scans.  Because of the mid-scan sneeze a second scan was done. Unlike previous CT Scans I was allowed to leave the hospital without the usual 15 minute wait to ensure that I did not have any side effect. Odd. Will discuss with my consultant at the next appointment.

 I have a quarterly appointment with my oncology consultant, Dr David Webb or one of his team every three month. Last week my appointment was with one of his team and two Mcmillan nurses, Sue and Jo. The oncologist asked how Iam coping with the treatment having had 20 chemotherapy infusions. I told her that I continue to tolerate the drugs very well and am managing most of the key side-effects well and continue to search for solutions for the others. She then told me that the recent CT Scan showed that the two growths remain stable, and the Blood CEA marker has recently fallen to 2, the lowest since November 2021. Most pleasing. She then asked if I wished to have a break, which I declined an ordered a further 12 infusions.

Attended the Shoreham Health Centre IV clinic for an appointment with Nurse Carol to remove the empty balloon pump. that was attached at the end of Wednesdays section at the Amberly Unit. The pump is loaded with around 100 ml of  fluorouracil  (5-FU) and is delivered at around 2.5 ml per hour over 46 hours. The observations reveal high blood pressure, 153/92.

Had a blood test on Monday with PICC line service. Discussed having a chest port to replace the PICC line, this would be installed under general anaesthetic as a day patient. I am now 9 months into the Folori infusion treatment programme having had seventeen cycles and this will continue as part of my palliative treatment. I agreed that the nurse should send in an email indicating that I wish to go ahead with this. The blood test was good as my neutrophil count was 2.0 so the infusion could go ahead. Had my 7th Covid-19 vaccination on Tuesday. Wednesday was a 2 pm appointment at the Amberly Unit for chemotherapy and was managed by nurse Racheal. Fell nauseous with pains in my abdomen. Crystallized ginger and ginger tea helped. With only one infusion during the past eight weeks it is not a surprise to have had some discomfort. The normal side effects are less worrying now. On Friday another appointment at Shoreham Medical Centre to have the pump removed, the 46 hour infusion was not qui...

My blood test taken at Bognor Regis War memorial Hospital yesterday revealed another low neutrophil level, this time at 1.3. As 1.5 is the protocol level tomorrow's chemotherapy infusion is postponed.  A phone call from Amberley Unit confirmed the delay, Louise will phone with a new appointment and a blood test form will be posted out. 

Week commencing 5th June was busy. On Monday there was IAA Judging held at the former London Transport Head Office in Broadway, central London. Wednesday visited Peter H in Sussexdown, and found him to be the most alert and chatty this year. He had new hearing aids that seemed to have made a significant difference. Thursday met Dr Webb for a three monthly appointment. He revealed that the growth remains stable and the CEA blood marker has been at 3 for the two most recent tests. Good news indeed and the treatment continues. Another appointment in September. We did discuss neutrophils with him as well as the side effects. Taking collogen was positively acknowledged, but B12 for neuropathy was questioned. It seems there is not much evidence to support that it improves nerve recovery. After the consultation I had a PICC line flush and redress at the Amberley Unit. Friday, we drove to Frome and onto Exmouth on Saturday.

My blood test on Wednesday revealed a low neutrophil level at 1.2 Too low for treatment today. Infusion 16 has been delayed by one week until next Friday. This brings a rearrangement of the subsidiary IV appointments including the pre-holiday PICC line service. The delay means that I will have had a 4 week gap between infusions followed by a three week gap. The most recent CEA test result was 4 so a further fall into the normal range!

My blood test showed that my neutrophil level was up to 2.4, double the result from the previous week. The nurse managing the treatment was Pip and was a delight. The treatment caused some nausea that crystalised ginger held control. All the side-effects from the previous infusion were relatively simple to manage. the potential chest infection is still an issue, the sputum sample has not shown a type of infection so a doctor's appointment is made for Tuesday so hopefully a route to a solution can be found.

After my visit to the Emergency Floor on 24th/25th January my temperature has not peaked, and my breathlessness has improved. My recovery was sufficient to enable chemotherapy to be resumed on 13th February, Monday. Blood test and PICC line service on 10th February, Friday and pump return and PICC service on Wednesday 16th.  My next CT scan has been rebooked at Southlands for 24th February along with the next blood test on the same visit to Shoreham. It will be interesting to learn if the 5 weeks without a chemotherapy infusion has changed the secondary cancers when I have my next Oncologist appointment.