Skip to main content

Chemotherapy day 55 - 3rd rest day

 Much better night, up just once at around 4.30 am.

Phone the Chemotherapy Helpline and spoke with Nurse Abbie who managed the first infusion on 4th November. Told her about my discovery that the capecitabine tablets non active ingredient, anhydrous lactose appears to be what is causing the flatulence that I have been suffering since the first cycle. I also flagged that my lips have been swollen during 4th cycle. She will email the consultant and put notes on the chemo care page for the team to be aware of my issue. Hopefully this will not cause a delay in treatment but will deliver a solution to the problem.

Phoned Ray, had a good Christmas but hurt his back by picking up a box from his car boot. Also had a chat with Ann about her Christmas. She and her family visited Peter and had 2 hours with him. We talked about gifts and inheritance tax, the seven years rule. 

Very tired, had a sleep during afternoon; unusual.

BSC - 4

Labels:

Comments

Post a Comment

Popular posts from this blog

Tinnitus, starting the journey

A few months ago I thought I could hear a noise from a radiator when trying to go to sleep one evening. The noise was so real that I felt that it must have been an actual sound. As the central heating was not on I came to the conclusion that the sound was in my head. That incident was an early sign on my journey to being a tinnitus sufferer. A visit to my GP prompted a response of 'Oh dear' when I told him that I thought that I was suffering from tinnitus. After inspecting my ears he told me that there were three approaches that he could offer me: Do nothing and learn to live with it, see an audiologist to check if I needed a hearing aid or undergo hearing therapy. I chose the audiology appointment as my preferred first step.
Post a Comment
Read more

Chemotherapy Cycle 26

Tuesday 16th January 9:45 I arrived at the Amberley unit at Worthing Hospital for my 26th cycle of the FOLFORI chemotherapy treatment. While the process took longer than normal due to a delay in the drugs arriving, but it was easier than usual. As always I am interested in learning useful knowledge. With the clinical educator overseeing the nurse who was at the end of his training I learnt some interesting things. Training takes 5 months, patients can remain on the treatment for a great many cycles. They have had patients who have had 100 plus. The side-effects have been at a much lower lever than normal, wonderful.
Post a Comment
Read more

My audiology appointment

About a month ago I had an appointment with an audiologist at the Royal Free Hospital in Bath. The purpose was to discover if, as the majority of tinnitus suffers do I have a hearing loss. I was taken into a sound proof room for the test. After being asked about my hearing and the issues I am having with tinnitus I was handed headphones to put on and a push button. The audiologist explained the test and with head phones he proceeded to test my hearing. This was done by playing sounds at frequencies between 250 hz and 8000 hz. Once over I was shown the results which showed that it is pretty normal across the range in both ears. So this meant that I am not a suitable candidate for a hearing aid. The audiologist suggested the Hearing Therapy should be something I should consider. I agreed and he wrote to St Martin's where the local hearing therapy team is based to ask for me to be seen by one of the therapists.
Post a Comment
Read more