Skip to main content

Chemotherapy day 55 - 3rd rest day

 Much better night, up just once at around 4.30 am.

Phone the Chemotherapy Helpline and spoke with Nurse Abbie who managed the first infusion on 4th November. Told her about my discovery that the capecitabine tablets non active ingredient, anhydrous lactose appears to be what is causing the flatulence that I have been suffering since the first cycle. I also flagged that my lips have been swollen during 4th cycle. She will email the consultant and put notes on the chemo care page for the team to be aware of my issue. Hopefully this will not cause a delay in treatment but will deliver a solution to the problem.

Phoned Ray, had a good Christmas but hurt his back by picking up a box from his car boot. Also had a chat with Ann about her Christmas. She and her family visited Peter and had 2 hours with him. We talked about gifts and inheritance tax, the seven years rule. 

Very tired, had a sleep during afternoon; unusual.

BSC - 4

Comments

Popular posts from this blog

Blood Test Results

 The pre-treatment blood test is important to ensure that patients are capable of with standing the toxic effects of the chemotherapy drugs. My neutrophil and Alt levels have cause deferment over the past few months. This weeks blood test results are ok so Monday's infusion will go ahead. That's Monday morning at 9:30 am definitely early! 

Tinnitus, starting the journey

A few months ago I thought I could hear a noise from a radiator when trying to go to sleep one evening. The noise was so real that I felt that it must have been an actual sound. As the central heating was not on I came to the conclusion that the sound was in my head. That incident was an early sign on my journey to being a tinnitus sufferer. A visit to my GP prompted a response of 'Oh dear' when I told him that I thought that I was suffering from tinnitus. After inspecting my ears he told me that there were three approaches that he could offer me: Do nothing and learn to live with it, see an audiologist to check if I needed a hearing aid or undergo hearing therapy. I chose the audiology appointment as my preferred first step.

Oncologist consultation

 I have a quarterly appointment with my oncology consultant, Dr David Webb or one of his team every three month. Last week my appointment was with one of his team and two Mcmillan nurses, Sue and Jo. The oncologist asked how Iam coping with the treatment having had 20 chemotherapy infusions. I told her that I continue to tolerate the drugs very well and am managing most of the key side-effects well and continue to search for solutions for the others. She then told me that the recent CT Scan showed that the two growths remain stable, and the Blood CEA marker has recently fallen to 2, the lowest since November 2021. Most pleasing. She then asked if I wished to have a break, which I declined an ordered a further 12 infusions.