Cancer Recovery Day 2

Up several times during the night, but slept through to 7.30 am.

Continued to doses thrush infection with Nystan suspension every 4 hours. Hard to know if there is any improvement. Voice certainly croaky.

Phoned the chemotherapy helpline to report my appointment with Dr Woodham yesterday and its outcome. When I said that my treatment over the past five months had been brutal, the nurse replied very brutal.

BSC - 4

Temp 36.8c

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Chemotherapy Cycle 26

Tuesday 16th January 9:45 I arrived at the Amberley unit at Worthing Hospital for my 26th cycle of the FOLFORI chemotherapy treatment. While the process took longer than normal due to a delay in the drugs arriving, but it was easier than usual. As always I am interested in learning useful knowledge. With the clinical educator overseeing the nurse who was at the end of his training I learnt some interesting things. Training takes 5 months, patients can remain on the treatment for a great many cycles. They have had patients who have had 100 plus. The side-effects have been at a much lower lever than normal, wonderful.

Chemotherapy day 58 - cycle 5 infusion

7.45 am pick up by the wonderful Peter for my 8.30 am infusion appointment. I was called first anchose a window seat on a very dull day The Oxaplatin infusion was preceded by a shot steroid a usual and several others including portion antihistamine. The infusion was made in my left arm and it cause a higher level of pain that the previous 4. Given a dextrose drip for 25 minutes to help reduce the discomfort. Discharged with mor3 discomfort than softer the other infusions. The other concern was a second raised blood pressure reading at 178 over 86, while less that two weeks ago it is substantial higher that at any reading since the start of the treatment. Apart from the one after the allergic reaction when an inpatient. A home blood pressure device was suggested by chemotherapy nurse. BSC - 4 Raised Pulse rate, 120 BPM

Chemotherapy infusion Cycle 21

My infusion yesterday was managed by Baki the only male nurse on the Amberley unit. I think that he set the rate of the infusion at 60 minutes which I fine too uncomfortable. It causes abdominal cramp and a higher level of nausea. I went in at 13:55 and left the unit at 15:45 more than an hour earlier than normal. The highlight of the appointment was a conversation with dietian Alexa. She has been helping me understand how to deal with my bloating and wind and has introduced me to the FODMAP diet that appears to be proving useful. From the last cycle I identified that bloating occurred from day 4 to day 11. I need to collect and understand the data.

My ever present friend and other health issues:

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