My ever present friend and other health issues:

Very poor night's sleep, needed 5 toilet journeys and hardly any sleep as trips were about every 60 to 75 minutes. Attended Martin Steele to order new spectacles: Amanda the owner was very efficient and caring about what I wanted/needed. Side-effects  Poor sleep Neuropathy Breathlessness Sore mouth Rough palette Tinnitus Dark urine Mild constipation Meds Anti-nausea B12 B6 Anti-acid reflux Calcium Paracetamol Observations Normal BP and pulse. Blood oxygen and temp. Spoke with Jack, Graham M and Ann H.

It's been about my small toes today, uncomfortable. Had an appointment with chiropodist Andrew Jenkins. Side-effects  Neuropathy:  Hand-Foot Syndrome or Palmar-Plantar Erythrodysesthesia Breathlessness Beginning of rough palette Mouth sores Nausea Dark urine Mild constipation Disturbed sleep Tinnitus . Meds Anti-nausea B12 B6 Anti-acid reflux Calcium Paracetamol Observations Normal BP and pulse. Blood oxygen and temp. Spoke with Clive J and louise Broken specs so appointment booked with Martin Steele tomorrow. mattress measured and photographed: 200 cm replacement to be made and supplied.

Feeling a little off today. Spoke to Mark and Graham Side-effects  Neuropathy:  Hand-Foot Syndrome or Palmar-Plantar Erythrodysesthesia Breathlessness Beginning of rough palette Nausea Dark urine Mild constipation Disturbed sleep Tinnitus . Meds Anti-nausea B12 B6 Anti-acid reflux Calcium Paracetamol Observations Raise BP and pulse. normal Blood oxygen and temp. Phone Conversation with Emma.

6 cycles in, halfway through this course of chemotherapy, I am feeling so much better that at the end of the first course in February. On reflection I was quite unwell for several weeks in February, March and April. Side-effects  Neuropathy:  Hand-Foot Syndrome or Palmar-Plantar Erythrodysesthesia Breathlessness Unpleasant taste in mouth Nausea Dark urine Mild constipation Disturbed sleep . Meds Anti-nausea B12 B6 Steroids Anti-acid reflux Calcium Paracetamol Observations Raise BP and pulse. normal Blood oxygen and temp.

Woke up with a temperature of 37.7c, this declined to 36.9c within 20 minutes. I did not but mentioned this to the chemotherapy helpline nurse who told me that I only need to report this sort of temperature if I have any symptoms, I also report the slow 5FU infusion rate that was due to a kink in the line. Received a call from Shoreham regarding the speed of infusion and was asked if I would be interested in coming for an earlier appointment. Considering the slow rate, I declined the offer. Friday is a PICC Line service day - 3.30 pm appointment at Shoreham Health Centre. PICC Line service was performed by Nurse Lyndsay for the second time. Booked appointments for 19th and 23rd of December. Ordered a second prescription of PICC Line dressings IV-3000 after discussing the shortage of it with Nurse Lindsay. If I get a further pack of 10, I will have enough to take me thought to the end of this course, keep 2 for spare just in case of need any unplanned redressing and share 6 with the IV

Home with the pump delivering fluorouracil (5FU) came home with the pump and infusion weighing 160 grams. at 11 am today it weighs 123 grams. honed Louise, the chemotherapy appointment manager at Worthing and arranged my 6th December appoint to 3 pm and advised her that I can't do 8.30 am and that 9.30 is the earliest I can get to Worthing. I now need to get new appointments for. Emma sent the website address for access to the Patients’ experiences of chemotherapy: side-effects associated with 5-fluorouracil & folinic acid in the treatment of colorectal cancer paper published in 1997, authored by CLARE DIKKEN RGN, Clinical Leader, JOHN SITZIA BA Researcher, Worthing Nursing Development Unit, Worthing.  Slept better with at least 3 hours and only one trip to the toilet. Side-effects  Neuropathy:  Hand-Foot Syndrome or Palmar-Plantar Erythrodysesthesia Breathlessness Unpleasant taste in mouth Mild headache Nausea Hiccoughs Dark urine Meds Anti-nausea B12 B6 Steroids Anti-acid r

Infusion day at Worthing Hospital, chemotherapy suit 2. Today Nurse Clare managed my infusion today. Only slight feelings of nausea this time. A couple gingernuts and small coffees seemed to do the trick. Also read the hilarious book by Stefan Appleby took my mind off the treatment. side-effects nausea mild headache neuropathy meds anti-nausea anti-acid reflux calcium B6 B12 normal bp, temp., and blood oxygen Raised pulse

Things got easier as the days went by. Monday was a blood test and PICC Line service day.  Side-effects neuropathy - feet & fingers headache Wind Tinnitus Meds B12 B6 Calcium Anti-acid reflux Paracetamol Normal Blood pressure, pulse, temperature and blood oxygen

Ct scan A CT scan on 7th September revealed that the cancers had grown since the June scan. Imaging date 21 Jun 2022 Source Mr Steven Denham Report Revealed multiple peritoneal deposits.

  Colonoscopy Imaging date 09 Aug 2022 Source Mr Steven Denham Report Endoscopic examination showed a healthy colon.

  Imaging date 16 Sep 2022 Source WEBB AR, University Hospitals Sussex NHS Foundation Trust (West) Report Clinical History : PICC line for chemo - CXR to confirm PICC tip position post placement Riskfactors : Previous history of any cancer Report : CTR, 132/326. Heart size and mediastinal contours appear normal. Tip of the right-sided PICC line overlies the distal SVC approximately 1.8cm below the level of the carina. Persistence of linear atelectasis within the left base. Lungs are otherwise clear and no pleural effusions are present. No evidence of pneumothorax demonstrated. Reported by John Mountney, Advanced Practitioner Radiographer. RA30033 'phone 01903 205111 Ex 85762. Voice recognition dictation.

Disturbed night sleep. Talked with Amanda and Emma Side-effects neuropathy - feet and fingers tinnitus wind rough palette dry mouth over night headache Meds B6 B12 Anti-nausea Anti-acid reflux Paracetamol Calcium Normal BP, Pulse, blood oxygen and temperature

Another very wet. Visited Peter with Ann, went to the GP surgery to order a repeat prescription for Omeprazole after an episode of acid reflux during the night. I then visited Sunbeam Cottage to check see how the new gas boiler has been installed and that the tenants are happy with it. I then dropped in on Pietro. Side-effects Neuropathy feet and fingers Wind breathlessness Tinnitus Meds B6 B12 Anti-nausea Anti-acid reflux Paracetamol Calcium Normal Blood pressure, pulse, temperature and blood oxygen

Better night's sleep: only got up three times and returned to sleep until the final time. Spoke with Louise, Mike and Tim. Received letter for new consultant appointment for 15th December. Side-effects Worst day of this course so far Neuropathy - feet poor sleep excess urination, very yellow excessive passing of stools, but no constipation. breathlessness headache tired, lack of energy tinnitus rough sensation of palette pins and needles in fingers slight nosebleed PICC Line discomfort at time: issues with tubular bandage cover. Meds Calcium Anti-nauses B6 B12 Paracetamol use of trimovate use of Benzydamine mouthwash Normal BP, pulse, Temperature and blood oxygen

Poor night's sleep, up 4 times. Quite uncomfortable with muscular and joint discomfort. Received IV3000 dressings....... at last. Ordered on 11th October, dressing in short supply. Side-effects Poor sleep excess urination headache aching neuropathy - feet Tired, lacking energy. Tinitus end of constipation! Meds anti-nausea B6 B12 paracetamol calcium Used Triomvate cream Raised BP Normal pulse, blood oxygen and temp. phone conversations with Mike, Roger & Sarah and Charles.

Poor night's sleep Side-effects Neuropathy Constipation Dark urine Nausea Meds Anti-nausea B6 B12 Calcium Raise BP and Temp Normal Pulse and blood oxygen

An OK day. Side-effects Feeling of nausea Neuropathy Constipation Some breathlessness Darker urine Meds Anti-nausea Steriods B6 B12 Anti-acid reflux Calcium Raised BP, Pulse Normal Blood Oxygen& EMP.

Appointment at Shoreham Health Centre for pump removal and PIC Line service. Nurse Catherine again. All in order. Phoned the Helpline for advice on the amount of infusion and about keeping the PM appointment. Good to go, better to have the pump removed with a little left that hold over for another day. Meds Steriods Anti-nausea Anti-acid reflux B12 B6 Side-effects Consipation Neuropathy Acid-reflux Nausea Raise BP, Temp and Pulse Normal Blood Oxygen

Issue with the infusion pump, only half the normal rate of 5Fu being initially achieved. Phone the chemotherapy helpline and spoke to Nurse Sarah. She advised moving the Swan Clip to see if there was a kink in the line, there was and there was. Moving the clip brought a normal flow of around 5ml per hour. Meds Anti-nausea B12 B6 Steroids Anti-acid reflux Side-effects Neuropathy Constipation Raise BP, pulse and temp. normal Blood oxygen 

Chemotherapy at Worthing Hospital MDCU. Talked with Nurse Sarah about ginger tea. The infusion was managed by Nurse Selina for the second time. No issues with infusion, but took a little longer that optimal due to shortage of staff. Peter and Jo took and collected me. Meds  B12 B6 anti- nausea Side-effects Neurapathy Nausea Normal BP at home, high at the hospital, Normal pulse, Temp and Blood oxygen

Woke with a minor pain in lower right abdomen after a better night's sleep. Side-effects neuropathy Wind Meds B12 B6 Normal BP, Pulse, Temp and Blood oxygen Day 10: Trip to Bognor War Memorial Hospital For PICC Line service and blood test with Nurse Ruth.

easy days Better nights sleeping Few side-effect Meds B12, B6 normal BP, pulse, Temp and blood oxygen Visit to Bognor War Memorial Hospital for Blood Test and OICC Line service: Nurse Ruth

Visited Peter H with Ann, he has declined over the past 8 weeks. Also enjoyed a Probus Club lunch with a talk on the work of Samaritans by club member Graham. Side-effects neuropathy headache feeling of being not quite normal. poor sleep Medication B6 B12 Calcium Paracetamol Normal blood pressure normal pulse normal temperature normal blood oxygen

A trip to Chichester on day 7 and a visit to Peter H on day 8.  More extended side-effects with cycle 4: neuropathy mild constipation up to day 7 headache poor sleep excess overnight urination dry mouth overnight Medication B12 B6 Calcium Blood pressure, pulse, blood oxygen and temperature all in normal range. appetite also normal